The Child Life Society provides vital assistance and programs to Jewish children and adults with cystic fibrosis.
In recent years, extraordinary medical advances have helped ease the symptoms and provide hope for those suffering from cystic fibrosis. But cystic fibrosis is still incurable. And public awareness remains low. As a result, those who have this genetic disease are frequently misunderstood and underserved.
The Child Life Society spreads information and provides desperately needed services to CF children and their families. You are an important part of this effort. The support of generous donors and concerned individuals, who fund our valuable programs, is changing the lives of CF children.
We lose too many Jewish children to this vicious disease.
Your contribution is a precious gift… the gift of life.
Please Donate Today!
- Therapeutic Respite (Keywest)
A 2007 study published in the New England Journal of Medicine, determined that individuals suffering with cystic fibrosis experience genuine, long-lasting relief from their symptoms through exposure to air with a high concentration of sea salt.
Living with cystic fibrosis is challenge enough. Prejudice and discrimination - the products of ignorance - lead to isolation, hurt, and unnecessary pain.
- Family Support
Families who live with cystic fibrosis find it difficult to reach out for help. The condition is not as well known as other life threatening diseases and the fear of stigmatization keeps many from publicizing their struggle. Details »
- Exercise Programs
Exercise is the best way for children with cystic fibrosis – who spend much of their time reacting to their disease with medication and therapy – to decrease shortness of breath, lessen muscle deterioration, and possibly add years to their lives.
- Home Help
Maintaining a household while caring for a child with cystic fibrosis overwhelms even the most organized parents. Adding to the burden is the knowledge that a child with CF typically suffers less in fresh, dust free environments. Details
- Toys for Hospitalized Children
In a sterile hospital environment, games, books, puzzles, and dolls are more than playthings. They help a child reclaim simple joy of play. The Child Life Society brings toys to hospitalized Jewish children to alleviate the anxiety and pain that fill their days. Details »
- Medical Information
A number of treatments exist for the symptoms and complications of cystic fibrosis. But the choice can be dizzying for parents who are desperate to bring relief and normalcy to the lives of their children.
- Medical Equipment
The exorbitant cost of cystic fibrosis-related medication is generally covered by health insurance.
But if a family exceeds their coverage, or if monthly co-payments for several children with cystic fibrosis becomes too much to bear, Child Life Society can help.
- Food Supplements
Children with cystic fibrosis are generally underweight or undernourished. This weakens their immune system and makes them vulnerable for life-threatening lung infections.
To strengthen their immune systems for a better chance to fight off infections, children with cystic fibrosis must take expensive food supplements on a daily basis.
- Lung Transplant Fund
While the cost of a lung transplant is usually covered by medical insurance, the cost of maintaining family stability is not.
Between traveling to different cities, the exhausting pace of medical appointments, and living with the dread of organ rejection, the process takes a dreadful toll on families.